Medical data are not yet easily accessible. There is no harmonized technical infrastructure, no set of standards, and the necessary legal, ethical and privacy frameworks are lacking. Fortunately, we are increasingly realizing that making such data safely available has many advantages in preventing and curing diseases.
Why a Health Data Infrastructure?
Analyzing and monitoring large amounts of data can prevent hospitalizations and overtreatment. Data provide insight into what works for very different people, so we can personalize treatments. Knowledge based on data also enables much earlier diagnoses. We can even start working preventively for many (prosperity) diseases and thus keep people from getting sick.
A national, integrated Health Data Infrastructure not only contributes to better health and a higher quality of care. It also provides healthcare providers with better tools to do their job properly. An infrastructure for health data makes available data accessible for faster and better medical research. All these improvements also have an economic impact. For the Amsterdam Metropolitan Area, this is estimated at around 195 to 315 million euros per year. This is a valuable use of available medical data for a healthy future for all residents.
What we are working on in 2022
- Construction and positioning of the Health Data Infrastructure in the Amsterdam Metropolitan Area, implementation of the first application areas and the connection with other national initiatives;
- A detailed governance model for the responsible and secure sharing of data, research into public support and legal and ethical aspects;
- A ready-to-go program team that can get started with further implementation;
- Attracting financing for the next phases.
What we achieved in 2021
Since 2020, Amsterdam Economic Board has been prioritizing the need to significantly improve on data sharing and using AI in healthcare. With 7 cooperation partners from the region, we worked out a plan in 2021, and found start-up financing. Major hospitals, universities, Philips, the Municipality of Amsterdam and a leading group of Board members have committed themselves to this plan and have made start-up financing available.
At the end of 2021, a quartermaster was recruited who will realize this infrastructure in the coming years. First regionally, and then scaling up nationally.
Invitation to collaborate
Do you also want to contribute to the development of a Health Data Infrastructure? Please contact any of the persons in the column on the right in this page.