It is organized by the Dutch NGO Foundation My Data Our Health, with a variety of partners: ZonMw (Dutch National Funding Agency for Health Research), Health-Holland (governmental economic bureau for Life Sciences & Health), TNO Innovation for Life, Waag Society, ABN-AMRO, Platform Patients and Food and other patient associations and companies.
It is an important congress because it addresses the urge of citizens and patients for self-care and their need for personalized support for their situation. This self-care represents an untapped creative potential, that can be of great significance for knowledge development, product development and the empowerment of patients and citizens. Unlocking this potential also has a major impact on research methods, the use of digital resources and the design of matching data infrastructure and governance.
The 3 core themes of the congress are:
1) data collection, data management and research by citizens in the health domain
2) new research methodology to extract wisdom from n-of-1 and to upgrade it to collectively applicable knowledge, products and advice
3) organizing a data infrastructure that allows data traffic between different sources, and that functions technically effectively and socially ethically.
A more detailed explanation of the program can be found on the conference website: www.BeyondRCT.net
BeyondRCT brings an inspiring mix of keynotes, pitches and work sessions. Think of Prof. Jeroen Geurts (Chairman of the Board, ZonMw), Bastian Greshake Tzovaras (Open Human Foundation), Teemu Ropponen (MyData.org), Rogier Koning (nobism.com), the MyOwnResearch consortium and many others. Chairman of the day is Maarten den Braber (NextHealth).
This conference does more than just putting on the table what is going on. Intended output is a multi-year work plan for Co-operative Citizen Science that helps both patients / citizens, research and industry to move forward. You can not only provide input for this, but you can also be part of it. Therefore: register now!
Would you want to advance suggestions or questions on the work plan Co-operative Citizen Science, please contact Gaston Remmers at firstname.lastname@example.org .